Salisbury Foundation Trust

FOI_5071

Internal Reference Number: FOI_5071

Date Request Received: 24/05/2019 09:29:15

Date Request Replied To: 24/06/2019 11:32:45

This response was sent via: By Email

Request Summary: Haemophilia Patients

Request Category: Private Individuals

 
Question Number 1:
How many Haemophilia A patients are registered at your hospital or treatment centre, and also how many Haemophilia B patients are registered with you?
 
Answer To Question 1:
18 Mild As
<5 Severe As
6 Carriers As
<5 Borderline A

<5 Mild Bs
<5 Severe B

Please note that it is Trust policy not to disclose potentially patient identifiable information, thus if there are less than 5 patients we will specify only '<5'.
 
Question Number 2:
I am trying to understand how patients are currently being treated. So, in the last three months of data that you can supply, how many Haemophilia A patients have been treated with:

Advate

Elocta

Novo Eight

Kogenate

Nuwiq

Refacto

Hemlibra

Factor eight inhibitor bypass activity

Novo Seven

Afstyla
 
Answer To Question 2:
<5 x Mild As attended and treated in Mar with Advate
plus we have <5 x Severe As on prophylactic treatment in March – total number needed 7
plus we had <5 visitors (Mild A) treated with Advate in Apr
Nothing in May
 
Question Number 3:
Have any been treated with Immune Tolerance Induction?
 
Answer To Question 3:
No
 
Question Number 4:
And similarly for Haemophilia B, in the last three months, how many patients treated with:

Refixia

Benefix

Idelvion

Rixubis

Alprolix
 
Answer To Question 4:
<5 x Severe B - Idelvion – prophylactic patient(s) so constantly on this medication

 
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Our staff at Salisbury District Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.

Salisbury NHS Foundation Trust, Salisbury District Hospital, Salisbury, Wiltshire, SP2 8BJ
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