Salisbury Foundation Trust

FOI_5187

Internal Reference Number: FOI_5187

Date Request Received: 25/07/2019 13:54:48

Date Request Replied To: 20/08/2019 08:38:55

This response was sent via: By Email

Request Summary: Homozygous Familial Hypercholesterolaemia diagnosis and treatment

Request Category: Companies







 
Question Number 1:
Does Salisbury NHS Foundation Trust diagnose patients with Homozygous Familial Hypercholesterolaemia (HoFH)? Y/N
 
Answer To Question 1:
Yes
 
Question Number 2:
If yes, does your trust diagnose adult patients, paediatric patients or both?
 
Answer To Question 2:
Both
 
Question Number 3:
How many patients in the last calendar year have you diagnosed with this condition? Please provide where available (and applicable) a breakdown by Adult and/or Paediatric Patients.
 
Answer To Question 3:
None
 
Question Number 4:
Which of the following tests/diagnostic procedures do you use at Salisbury NHS Foundation Trust in relation to the diagnostics of HoFH? For these tests, which ones are you able to carry out “in house”? Of those carried out elsewhere, where are patients referred to have the testing carried out? For answers please use table below.
i. Cascade Genetic/DNA Tests
ii. Dutch Lipid Clinic Network (DLCN) criteria
iii. Simon Broome diagnostic criteria
iv. Family History
v. Cholesterol/LDL Blood Testing

Please provide this info in table attached.
vi. Other (please specify details of name of test in the FOI return)
 
Answer To Question 4:
Please see attached document. FOI 5187 Q4.docx
 
Question Number 5:
Does Salisbury NHS Foundation Trust treat patients with Homozygous Familial Hypercholesterolaemia (HoFH)? Y/N
 
Answer To Question 5:
No
 
Question Number 6:
If no, please specify where patients diagnosed with HoFH are referred to for treatment. Please specify Trust/Organisation Name and Hospital Name where possible.
 
Answer To Question 6:
Hammersmith Hospital, London
 
Question Number 7:
If yes, does your trust treat adult patients, paediatric patients or both?

i. If your trust doesn’t treat a subgroup (Adult or Paediatric), to which organisation are this sub group referred to for treatment? Please specify Trust/Organisation Name and Hospital Name where possible.
 
Answer To Question 7:
N/A
 
Question Number 8:
How many patients in the last calendar year have received treatment for HoFH at Salisbury NHS Foundation Trust? Please provide where available (and applicable) a breakdown by Adult and/or Paediatric Patients.
 
Answer To Question 8:
None
 
Question Number 9:
For HoFH patients requiring Apheresis, are you able to carry out this procedure at Salisbury NHS Foundation Trust? Y/N

i. If no, to which organisation(s) do you refer patients to for Apheresis treatment and how many patients are referred to these sites? Please list by trust name and hospital site where available, and where possible/applicable please breakdown patient referrals by Adult and Paediatric.
ii. If yes, how many HoFH patients in the past calendar year have been treated by Apheresis by Salisbury NHS Foundation Trust? Please where possible (and applicable) provide with break down by Adult and Paediatric Patients.
 
Answer To Question 9:
No.

i. If no, to which organisation(s) do you refer patients to for Apheresis treatment and how many patients are referred to these sites? Please list by trust name and hospital site where available, and where possible/applicable please breakdown patient referrals by Adult and Paediatric.

Hammersmith. No Patients in last calendar year.
Please see attachments:
FOI 5187 Q4.docx
FOI 5187 Q4.pdf
 
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