Salisbury Foundation Trust

FOI_5299

Internal Reference Number: FOI_5299

Date Request Received: 17/09/2019 09:50:35

Date Request Replied To: 11/10/2019 14:08:20

This response was sent via: By Email

Request Summary: Trust treatment of Hereditary angioedema HAE

Request Category: Private Individuals






 
Question Number 1:
Does your trust treat Hereditary angioedema HAE? [Yes/No]
 
Answer To Question 1:
We treat hereditary angioedema in cases of emergency only
Patients are in the care of consultants elsewhere
 
Question Number 2:
In the last 6 months, how many patients with Hereditary angioedema (HAE) have been treated with,
• Berint
• Cinryze
• Firazyr
• Ruconest
• Takhzyro
• Tranexamic acid
• Other
 
Answer To Question 2:
Please note that our system cannot search by diagnosis, therefore the figures below do not only related to patients with HAE.

• Berint - 0 (If you meant Berinert then >5)
• Cinryze
• Firazyr
• Ruconest
• Takhzyro
• Tranexamic acid - approx. 150 people were treated with this drug, but we are unable to say for what condition.
 
Question Number 3:
Over the past 6 months, how many patients with persistent / chronic* Immune thrombocytopenia purpura [ITP] have you treated [include all treatments such as steroids, splenectomy, immune globulins, Rituximab and TPOs]?
 
Answer To Question 3:
Less than 5 patients have been treated in the past 6 months.
 
Question Number 4:
Over the past 6 months, how many patients with persistent / chronic* Immune thrombocytopenia purpura [ITP] were new to treatment with the following;
• Eltrombopag [Revolade]
• Romiplostim [Nplate]
*Patient has ITP for over 6 months and does not respond to standard active treatments
 
Answer To Question 4:
Less than 5 patients were new to treatment in the past 6 months.
 
Question Number 5:
Over the past 6 months, how many patients have you treated with the following conditions and treatments. If None, please state None.

Please complete in attached table.
 
Answer To Question 5:
Please see attached spreadsheet.8190 - FOI 5299 Q5.xlsx
Please see attachments:
8190 - FOI 5299 Q5.xlsx
 
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Our staff at Salisbury District Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.

Salisbury NHS Foundation Trust, Salisbury District Hospital, Salisbury, Wiltshire, SP2 8BJ
T: 01722 336262 E: sft.pals@nhs.net
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