Salisbury Foundation Trust

FOI_5492

Internal Reference Number: FOI_5492

Date Request Received: 20/01/2020 08:37:40

Date Request Replied To: 17/02/2020 09:16:51

This response was sent via: By Email

Request Summary: Haemophilia A and B

Request Category: Researcher

 
Question Number 1:
How many patients with Haemophilia A are registered with your centre?
 
Answer To Question 1:
We cannot answer this as we do not keep a local register of patients with Haemophilia or Von Willebrand disease. The database is held centrally. We have found a link here: http://www.ukhcdo.org/nhd/ which suggests the location of the database is Manchester.
 
Question Number 2:
Of these how many are mild, moderate or severe? If unknown, please state unknown.
 
Answer To Question 2:
Please see answer to question 1.
 
Question Number 3:
How many patients with Haemophilia B are registered with your centre?
 
Answer To Question 3:
Please see answer to question 1.
 
Question Number 4:
Of these how many are mild, moderate or severe? If unknown, please state unknown.
 
Answer To Question 4:
Please see answer to question 1.
 
Question Number 5:
How many patients with Von Willebrand disease are registered with your centre?
 
Answer To Question 5:
Please see answer to question 1.
 
Question Number 6:
In the last 3 months, how many patients have been treated with the following:
Advate,
Emicizumab (Hemlibra),
NovoEight,
Refacto AF,
Veyvondi,
Voncento,
Willate,
Willfact,
Willfacttin,
BeneFix
Rixubis”
 
Answer To Question 6:
Advate, <5
Emicizumab (Hemlibra), 0
NovoEight, 0
Refacto AF, 0
Veyvondi, 0
Voncento, <5
Willate, 0
Willfact, 0
Willfacttin, 0
BeneFix and Rixubis” 0
 
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Our staff at Salisbury District Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.

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