Wednesday 28 February 2024
Salisbury Foundation Trust

FOI_7122

Internal Reference Number: FOI_7122

Date Request Received: 12/04/2023 00:00:00

Date Request Replied To: 27/04/2023 00:00:00

This response was sent via: By Email

Request Summary: request on clotting disorders

Request Category: Companies

 
Question Number 1:
How many patients has your Trust treated (for any medical condition) in the past 3 months with the following drugs:

• Alphanate

• Alprolix

• BeneFIX

• HaemateP

• Idelvion

• Nuwiq

• Refixia

• Rixubis

• Veyvondi

• Voncento

• Wilate

• Willfact
 
Answer To Question 1:


<5 Voncento
<5 Benefix
no other drugs on list
 
Question Number 2:
How many patients have been treated in the past 3 months with:

• Gene therapy for Haemophilia B ONLY

• Desmopressin for Von Willebrand Disease ONLY

• Tranexamic Acid for Von Willebrand Disease ONLY
 
Answer To Question 2:

0 Gene therapy
0 Desmopressin
<5 Tranexamic Acid
 
Question Number 3:
Of the patients that were treated with Veyvondi in the past 3 months, how many patients received treatment:

• During surgery

• On demand to treat bleeding episodes
 
Answer To Question 3:

N/A
 
Question Number 4:
How many patients are registered with your trust for the following diseases:

• Haemophilia B

• Von Willebrand Disease

• Von Willebrand Disease - paediatric patients (age 17 or under)
 
Answer To Question 4:

Haemophilia B <5
Von Willebrand Disease 18
Vpm Willebrand Disease age 17 or under <5
 
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