FOI_7903

Internal Reference Number: FOI_7903

Date Request Received: 23/04/2024 00:00:00

Date Request Replied To: 14/05/2024 00:00:00

This response was sent via: By Email

Request Summary: Duchenne muscular dystrophy (DMD)

Request Category: Charities


Question Number 1: Under the Freedom of Information Act 2000, I would like to request the following information in regard to the treatment of Duchenne muscular dystrophy (DMD) by your organisation: • Does your organisation commission any services for people with DMD? o If no, does your organisation expect to commission services for DMD in the future? o If yes, what services for people with DMD does your organisation commission?

Answer To Question 1: The trust does not commission any services for DMD paediatric patients outside of the block contract for general paediatrics. For paediatric DMD care this is lead by the tertiary paediatric neurology team based in Southampton – I am not sure if this is a commissioned service. We have no expectation to commission service for DMD in the future. Therapy services for this population group are provided through HCRG community team. Some of the older children with DMD may have respiratory compromise requiring specialist paediatric respiratory physiotherapy. There is no commissioned service for this in either an acute or community setting for our local children and young people. The tertiary centre may provide monitoring and equipment for this part of DMD care but do not offer outreach.

Question Number 2: • How many people with DMD does your organisation serve?

Answer To Question 2: There are currently <5 children with DMD under care of Salisbury NHS Foundation Trust

Question Number 3: • Does your organisation have any DMD-specific (or muscle-wasting disease-specific) policies or guidance?

Answer To Question 3: No – guidance and planning for paediatric DMD patients is provided in shared care of patients with Southampton Paediatric neurology team

Question Number 4: • Do any of your organisation’s strategies, objectives, plans, performance indicators, audits, inspections, or similar, cite DMD (or any muscle-wasting disease) or use either as a metric?

Answer To Question 4: No – (Paediatrics also don’t have specific mention of other neuromuscular diagnoses such as Becker’s, SMA, myotonic dystrophy)

To return to the list of all the FOI requests please click here

Our staff at Salisbury District Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.